day +73 post transplant

Sorry I didn't make any entry last 2 days. It was just that I didn't feel quite okay...The result of kidney function yesterday didn't show any much difference from the previous one. I guess it'll take sometime to improve...The nausea late afternoon and evening continues...
My wife was posted to Klang General Hospital for her specialist position. Still trying to appeal if could get nearer hospital since I am still getting intensive follow up.

day +72 post transplant

day +71 post transplant

day +70 post transplant

I am not really feeling well. A bit weak. May be my Hemoglobin is a bit low and I tend be breathless even after simple task like talking too long and after shower. So, I just rest a lot.....

day +69 post transplant

I went to the hospital as scheduled with my wife. The blood result today showed some improvement. The kidney function got slightly better and there was no necessity to reduce the anti rejection drug. The anti viral infusion still was witheld since the cell counts were still low.

day +68 post transplant

Yesterday (Sunday) :Sorry no entry since I was still relaxing

day +67 post transplant

Weekend: no blogging day, relaxing day and watching relaxing TV programmes

day +66 post transplant

Yes!!! It has been a cheerful day for my wife since she passed her Final Masters (Anesthesia) exam. The result came out yesterday and I shared the joy on her achivement. I was so excited when she told me so. At least the physical and psychological burden of preparing and facing the exam has gone off. I think she had enough when she had multiple times to pass the Part I previously and this time she made through with straight attempt.

day +65 post transplant

I went to the hospital to recheck my blood test. All my cell count didn't changed much or further went down. Most probably because the doctor has stopped the anti viral infusion temporarily. However, I am little worried since the kidney function was not that good. In fact one of the result showed significant increment within a week. I still believed and hope it will be temporary and will improved when the doctor decided to reduce the anti rejection next week.

Anyway, my general condition hasn't changed much. I felt weaker and more nauseated especially towards the evening. I also felt more thirsty even though I have tried taking as much water.

day +64 post transplant

I was relaxing at home yesterday. My wife went for her last paper/session of her final exam. Hope that she will get through. My general condition was slightly better but I still felt weak and uncomfortable with the nausea and headache especially towards the evening. For the past few days I ate less during dinner....

day +63 post transplant

Nothing much to mentioned. My nausea and appetite still didn't show any improvement especially towards the evening. I tried to maintain gulping a lot of water as much as I could to clear those toxins from my body that could causing the problem...

day +62 post transplant

I went to hospital today as usual. In the ward (day care now) waiting for my blood result.

My blood result: The platelet was down to a level that they have to withold the prophylactic anti viral infusion. So there will be no infusion until my count return to a better level.

While waiting my turn to get the medicine from the pharmacy, the ward staff called me that the urea and serum creatinine (body substance used to indicate renal function) has further escalated. I know it must be the Cyclosporin side effect but I hope it is transient and reversible...

I still have that funny ammonia like smell....

day +61 post transplant

At certain times I felt I was a bit weaker and uncomfortable. Yesterday, I noticed again that I smelt something funny (ammonia-like smell) but it was temporarily..and when it comes, togather with the nausea and fatigue feeling made my day a bit down...

day +60 post transplant

I was not really feeling well today. Actually my appetite has been a bit down for the past couple of day. The hunger was there but I always feel heart burn or somekind of bloatedness or uncomfortable over my stomach. Really difficult to describe....but it really affect my appetite.

day +59 post transplant

Yesterday, I sent my wife to the university for her exam. Moral support!...Then the whole day I was just spending my time with my kids. It was the last day of school before long school holiday and my son took the chance not to attend the school. He got a few reasons not to go, no class and activity and the other thing was his friends also did not go and they all had plan! What an excuse...I should think of what program I should fix for him. Otherwise he will be at my neighbour's house all day long during this school holiday..

day +58 post transplant

Yesterday, the hospital called me and informed that I need to reduced the Cyclosporin dose since the blood level is above the desired range. Hmm...they better reduce the dose or else I will be like this.....

As for today, I went to hospital as usual and getting my routine anti viral infusion. My blood count result continue to fuurther reduced but not to critical level. Hopefully it will pick up again when they started the half dose of antiviral.

day +57 post transplant

I noticed that I grew fine hair on my face. Must be the Cyclosporin side effect. I hope it won't so hairy.....

*Rogaine is medicine to treat male baldness

day +56 post transplant

day +55 post transplant

Hospital visit again today...

My cell count was okay (see my latest blood result). There was further reduction in cell count. The doctor reduced the antiviral infusion into half.

I still try to find a time to catch my latest pics so that my overwhelming friends will overwhelm when they got to see it....

day +54 post transplant

Sorry for not making any entry yesterday as I was so busy relaxing......

day +53 post transplant

Nothing much to write today since I slept all day. After morning pray and breakfast, I continue to sleep until almost noon. I don't know why I am so sleepy today...The drizzle outside has made a good time to sleep again....zzzzz

day +52 post transplant

Yesterday, I went for daycare visit to get my twice weekly prophylactic anti viral infusion. I drove alone since I have the confidence since last few visits. I have to be since my wife is taking her final Masters exam in a week time and I want her to concentrate on her study.

My blood results were okay.

Generally, I felt better except sometimes I do have body ache/ bone pain or something like generalized weakness. I don't know if that could be part of steroid side effects since I have been taking it for more than a month now.

Apart from that, the palpitations continues to disturb me occasionally. These are all other minor symptoms that I rarely mentioned and bothered but if everything comes at one time, I would become a bit groggy.

My face becoming more bloated and rounded. Some said I have two faces on my head and others said I look like a baby with dropped fulled cheek and the worst one person said that my face going to explode! Hahahaha......

day +51 post transplant

Today is public holiday- Deepavali. So my daycare visit will be postponed to tommorrow. I just rest at home, playing internet games with my son.

day +50 post transplant

HAPPY DEEPAVALI TO ALL MY HINDU'S FRIENDS AND READERS

day +49 post transplant

No entry today since I am not feeling well....

day +48 post transplant

Everything went as usual. I went to the hospital this morning and the blood results came back with significant reduction in the white cell count but still within the normal value. The platelet continued to show some increament.

A few people I met today pretended could not recognized me since my facies became so different. Even my neighbours initially did so because they never saw me bald, with glass, darker and chubby......

I think my hair started to grow.....could be those hair follicles is surviving again....

day +47 post transplant

One thing that I noticed and worried lately is that my appetite is really 'enhanced'. I know this could be due to the steroid that I am taking and I knew it is a good sign that I am recovering well. Even in early morning, when I got up, one of the first thing that come in my mind is always 'what is there in the kitchen that I can munch before I start the day?'

Then the next thing that I fear most what would happen to my weight that keep increasing? I hope it is a temporary effect, at least from my reading and from other few patients experience. I am not so bothered about the overweight but it has raised some 'associated problem' like less trousers that I could wear and the feeling lacking of energy.....hhhhmmmm. I started to think what schedule of exercise should I stick to when the time allowed me to do so.

day +46 post transplant

I went for a brisk walking early morning, with improvement. I mean, I managed to walk a bigger round....yes, I walked the whole round of my residential area. Okay, its not bad. But still, I cautiously not to exert myself too much....so much so not to increase my body "global warming"....

The whole day followed by 'body building' activity. Eat and rest.....Hmmm...I think I should start doing something more creative....next week.

day +45 post transplant

Another resting day.....body and minds...and slept well.

....zzzzzzzz

day +44 post transplant

Outing day.....yeah!!! but to hospital. Today the blood result was okay. My blood pressure was okay too without antihypertensive. I have another antibiotic to add to my list starting from today. But it is going to be taken twice a week. It is to cover me from pneumocystic (protozoan type of germ) lung infection. My weight has been playing around 80-81kg. Another good thing about steroid is that it has really increased my appetite and being at home and NOT doing a lot of other things, 'risk' myself of engaging to eating activities. So in order to turn the habit into a healthy activity, I will always make sure that I have enough fruits stock as my healthy snacks......